What if treatment didn’t have to be trial and error?
Earlier this week we shared MELOPIS, and what it’s starting to find about the brain in ME/CFS. Today, we want to take you inside a different piece of the program: TOTEM. For most people with ME/CFS, finding a treatment that works is trial and error. As Dr David Fineberg, GP and PhD candidate at the […]
Inside SPOT-ME: paediatric ME/CFS research
Research in the youngest patients with ME/CFS Last week, we shared where the research is heading next. Today, we want to take you inside one of the projects already helping shape that future. Children and teenagers with ME/CFS have historically been almost invisible in biological research, despite being one of the two peak age groups […]
Where the science is leading next
Earlier this month, we marked ME/CFS Awareness Day with the community. Thank you for everything you do to help keep these diseases, and the people living with them, visible. Today, we want to share where the science is heading next, and why this moment matters. Watch the Video → After more than a decade of […]
Momentum into Outcomes: our 2025 Annual Report
As we close another year of progress toward effective treatments for ME/CFS and Long COVID, we want to share with you what your support has made possible Click the image to read the interactive e-zine. Thanks to the strength of the global OMF network and the leadership of Dr Chris Armstrong at the Melbourne ME/CFS […]
Today, we make ME/CFS visible
Show solidarity with the ME/CFS community on Awareness Day. Today, we make ME/CFS visible. On International ME/CFS Awareness Day, we honour the millions of people around the world living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) — a serious, complex, and often invisible disease that continues to steal lives, families, careers, education, and futures. For many, […]
OMF’s Model: Collaborative Approach to Systems Research
For multi-system chronic complex diseases like ME/CFS and Long COVID, no single laboratory, dataset, or discipline can capture the whole picture alone. Through our Collaborative Approach to Systems Research model, Open Medicine Foundation (OMF) brings together multiple institutions and disciplines within a shared scientific framework. This approach enables coordinated hypothesis generation, standardised data collection, and […]
Melissa’s Story: Living with ME/CFS and the Urgent Need for Hope
During ME/CFS Awareness Month, we’re sharing stories of people whose lives have been profoundly disrupted by ME/CFS. Today, we share Melissa’s story. Before becoming unwell, Melissa lived a full and active life. She describes herself as driven, energetic, and a bit of a perfectionist—someone who worked hard and embraced life to the fullest. She was […]
A new chapter in ME/CFS treatment research begins today—and your voice is essential to making it count.
At Open Medicine Foundation Australia (OMFAU), helping people get better is at the heart of everything we do. It drives our research partnerships, our scientific standards, and our unwavering commitment to the millions of people living with ME/CFS, Long COVID, and related diseases. Today, we are pleased to share a significant step forward: the launch […]
Long COVID Awareness Day: The Fight Is Far From Over
Today is Long COVID Awareness Day — a moment to pause and acknowledge the reality facing hundreds of millions of people worldwide. Long COVID is not a disease fading into the past. For many, it is a daily struggle with no clear end and no approved treatment in sight. At Open Medicine Foundation Australia (OMFAU), […]
Post-viral Encephalopathy
Herpes Simplex Encephalopathyand the Development of ME / CFS STUDY AIM The purpose of this study is to better understand what may cause the onset of ME/CFS after an initial infection. LEAD INVESTIGATORS Jonas Bergquist, MD, PhD Wenzhong Xiao, PhD Chris Armstrong, PhD Gabriel Westman, MD, PhD UPDATES AND POTENTIAL Based on data analysis, the team has […]